Update on Henrik
Posted by Henrik at 3/28/2008 3:09 PM and is filed under uncategorized 
Given a choice, Henrik would rather be hiking a trail on Mt. Rainier,
walking in Prague, visiting cousins in Northern Denmark or playing
tennis with Jack, but at the moment his journey is fighting cancer in
Southeast Kansas. Since our last communication the tumor has appeared
in the corpus callosum area of the right side of his brain and has
disabled his left arm and leg.
Henrik's doctor confirmed the change after reviewing his MRI taken this
week. Dr. Nabbout has discontinued the temodar chemo after two rounds
and will begin a treatment of Avastan (referred to as a smart bomb
against tumors) and also a chemo named CPTII. The treatment will
consist of weekly IVs at the Cancer Center of Kansas in Parsons.
The corpus callosum region controls coordination of the body. Henrik
has fallen several times (without injury) and we now assist him in
walking or, most recently, using a wheelchair for mobility.
Between the temodar treatments Henrik has enjoyed a trip to South
Carolina in February to visit Josh, Greer and Lane and a trip to the new
Sprint Center in downtown Kansas City with friends to watch his beloved
Jayhawks play in the basketball semifinals of the Big Twelve
Tournament. The Jayhawks won the Big Twelve, "Rock Chalk". A trip to
Lawrence with Josh, Greer, Lane and Marla to visit several old friends
was also a highlight of March.
A surprise and a real upper was the receipt of a basketball signed by
all members of the KU basketball team and an autographed picture of
Coach Bill Self. It seems Jack Johnson wrote a letter of request to
Coach Self. Jack said, "Here in SE Kansas people think Coach Self walks
on water." Henrik says he thinks "Jack walks on water." March Madness
in the college basketball world is here and is a great diversion as
Henrik and his friends and family cheer for KU.
Henrik and friends are developing a Web site to provide information on
Henrik's experience since his diagnosis in January 2006 and to
acknowledge the support system of friends and family that has sustained
him on this journey. Chris Polsak has developed/designed the Web site
for Henrik. The site is in process of development and can be contacted
at www.gbmvikingwarrior.com. The GBM is for the name of the brain tumor
Glioblastoma Multiforme.
Henrik says hello and sends thanks to the many friends who have visited
or contacted him to provide continued support and encouragement. Henrik
says, "there are so many people to say "thank you" to. I feel so
lucky." Henrik welcomes your contact at 620-231-0558, 372 E. Highway
126, Pittsburg, KS 66762 or L.Henrik.Christensen@gmail.com.
Prepared by Henrik's dad at Henrik's request.
Lee Christensen
walking in Prague, visiting cousins in Northern Denmark or playing
tennis with Jack, but at the moment his journey is fighting cancer in
Southeast Kansas. Since our last communication the tumor has appeared
in the corpus callosum area of the right side of his brain and has
disabled his left arm and leg.
Henrik's doctor confirmed the change after reviewing his MRI taken this
week. Dr. Nabbout has discontinued the temodar chemo after two rounds
and will begin a treatment of Avastan (referred to as a smart bomb
against tumors) and also a chemo named CPTII. The treatment will
consist of weekly IVs at the Cancer Center of Kansas in Parsons.
The corpus callosum region controls coordination of the body. Henrik
has fallen several times (without injury) and we now assist him in
walking or, most recently, using a wheelchair for mobility.
Between the temodar treatments Henrik has enjoyed a trip to South
Carolina in February to visit Josh, Greer and Lane and a trip to the new
Sprint Center in downtown Kansas City with friends to watch his beloved
Jayhawks play in the basketball semifinals of the Big Twelve
Tournament. The Jayhawks won the Big Twelve, "Rock Chalk". A trip to
Lawrence with Josh, Greer, Lane and Marla to visit several old friends
was also a highlight of March.
A surprise and a real upper was the receipt of a basketball signed by
all members of the KU basketball team and an autographed picture of
Coach Bill Self. It seems Jack Johnson wrote a letter of request to
Coach Self. Jack said, "Here in SE Kansas people think Coach Self walks
on water." Henrik says he thinks "Jack walks on water." March Madness
in the college basketball world is here and is a great diversion as
Henrik and his friends and family cheer for KU.
Henrik and friends are developing a Web site to provide information on
Henrik's experience since his diagnosis in January 2006 and to
acknowledge the support system of friends and family that has sustained
him on this journey. Chris Polsak has developed/designed the Web site
for Henrik. The site is in process of development and can be contacted
at www.gbmvikingwarrior.com. The GBM is for the name of the brain tumor
Glioblastoma Multiforme.
Henrik says hello and sends thanks to the many friends who have visited
or contacted him to provide continued support and encouragement. Henrik
says, "there are so many people to say "thank you" to. I feel so
lucky." Henrik welcomes your contact at 620-231-0558, 372 E. Highway
126, Pittsburg, KS 66762 or L.Henrik.Christensen@gmail.com.
Prepared by Henrik's dad at Henrik's request.
Lee Christensen
Dear Henrik,
I hope you like the pictures I sent. I am so glade that you and your friends are developing this web-side to update your news, so I can know the progress and pray for you. Grace also wants to give you her best wishes to you. Even though we are in Taiwan, we are not that far away from you. We may not be able to be there to hold your hands physically but we have been thinking about you, especially all the good time we had in China.
Carol
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Dear Henrik,
I hope you like the pictures I sent. I am so glade that you and your friends are developing this web-side to update your news, so I can know the progress and pray for you. Grace also wants to give you her best wishes to you. Even though we are in Taiwan, we are not that far away from you. We may not be able to be there to hold your hands physically but we have been thinking about you, especially all the good time we had in China.
Carol
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That's a great group of photos! I bet I have some super goofy ones you could use. Just in case you feel that aspect of your personality is not well represented!
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Hey. Hang in there, friend. Just wanted to say you are in my thoughts. You know I suck at staying in touch, but I am thinking about you. Love the site. Many many hugs.
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Ciao Henrik, Roberto send to me this link about your situation. Is very difficolt find the right word for say that you are in my heart and in my family heart. To night I meet Roberto for write to you a email about our life in Riccione. Do you remember our summer?
ciao
Antonio
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Dear Henrik, as Antonio told you, we will meet soon together to write you an e-mail regarding our news about our life here in Italy. It has been passed so long time since we met and I missed the good time we spent together (do you remember the journey in Urbino!?)
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Hi Henrik!
Great photos! And the family photo - all color-coordinated and everything! Color me impressed.
It's fun to see the photos of young Henrik too.
Big hug for you.
Cara
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Hi Henrik,
I found your website today when I googled you. Your website is wonderful. You are in my thoughts! Enjoy the game tonight
ROCK CHALK JAYHAWK!
Cheryl
P.S. We taught our dog to howl along to the Rock Chalk Chant...the Jayhawks transcend species boundaries!
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Your fanny pack with the shorts and knee-high boots on Mt. Rainer--priceless photo.
And thanks to you now I can say I've read a sports page article.
Much love,
Jennifer
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We are going to have a lunch on Tuesday the 13th of May. We want you to come if you can. Please let me know.....Mary
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